In 2007, after a series of individual events spanning 14 years, we came together as a group to help raise awareness of cystic fibrosis (CF) and raise funds for medical research into the condition. We come from all walks of life and team work is at the very heart of our charity. One of our founding members has the condition and we also have other friends, colleagues and families on our committee who have a direct connection with CF. Having such a personal understanding of CF, we as a group know that research into finding a successful treatment that will help all, regardless of gene type is so vital.
Our charity is made up of volunteers and we make sure that your money is spent wisely. We liaise with the UK Gene Therapy Consortium to ensure that any money raised is directly spent on research.
We respect and value each and every person who chooses to fundraise on our behalf to support the CF community and we will try to provide as much support as we can for your event/fundraiser.
We have had some good fun over the last few years and have met some great people along the way. We are grateful to everyone for their help and support - from individuals who make donations or support our events by generously giving up their spare time or hard earned cash and also to the larger companies who provide sponsorship and backing. We couldn't do it without you! Here's to many more fun packed events!
Presentation of Multi Dose Clinical Trial Results (2015): Prof Eric Alton presents the data from our MD clinical trial to an invited audience from the UK CF community. May 30 2015, Imperial College, London. More...